To GBS/CIDP/Polyneuropathy Patients and Friends
Hello my friends with GBS/CIDP/Polyneuropathy,
I was diagnosed with GBS, then CIDP then polyneuropathy in Jan 24,2012 and I was scared that it would be the end of my life. My body weakened starting from my feet all the way up to to my hands up to the point that I needed the nurse or my brother to feed me. Now I can walk and work normally as I did since September, 2012, for more than 2 years now.
My advice to all of you my brothers and sisters is to hang on to your faith and never lose hope. Stay positive. Stay connected to the world - the GBS-CIDP FB forum helped me , my FB and twitter friends kept me strong. The visits of my colleagues at work re-informed that I can still contribute something to this world. My mom and my brother supported me on day-to-day basis and I was very lucky to have them by my side during the visiting hours. The rest of my relatives all over the world sent their love and prayers. But if you have no family around- the doctors, the nurses and health aid workers are truly commendable for their love, care and dedication. Don't hesitate to ask them to take you in a wheelchair outside for example for a breath of fresh air or to appreciate the beauty of the flowers near the hospital garden. I find them very accomodating and your comfort is their priority.
Focus on your recovery not on the disease and its effects.
This book/audio/video The Secret also helped me believe that our body can heal itself.
Believe that your body will fight the disease - using as strong imagery such as that there is military operation within your body winning the battle against unwanted viruses and anti-immune chemicals.
And to all of you friends and relatives of those having this rare disease:
- your visit, your support would truly help the patient be strong and feel loved. You have no idea how much physical and emotional pain we patients feel but we keep it from our loved ones as we don't wanna see them shed tears - that is the most painful sight for us.
To both patients and supporters - keep fighting and never give up and you will be triumphant and be happy again.
I was diagnosed with GBS, then CIDP then polyneuropathy in Jan 24,2012 and I was scared that it would be the end of my life. My body weakened starting from my feet all the way up to to my hands up to the point that I needed the nurse or my brother to feed me. Now I can walk and work normally as I did since September, 2012, for more than 2 years now.
My advice to all of you my brothers and sisters is to hang on to your faith and never lose hope. Stay positive. Stay connected to the world - the GBS-CIDP FB forum helped me , my FB and twitter friends kept me strong. The visits of my colleagues at work re-informed that I can still contribute something to this world. My mom and my brother supported me on day-to-day basis and I was very lucky to have them by my side during the visiting hours. The rest of my relatives all over the world sent their love and prayers. But if you have no family around- the doctors, the nurses and health aid workers are truly commendable for their love, care and dedication. Don't hesitate to ask them to take you in a wheelchair outside for example for a breath of fresh air or to appreciate the beauty of the flowers near the hospital garden. I find them very accomodating and your comfort is their priority.
Focus on your recovery not on the disease and its effects.
This book/audio/video The Secret also helped me believe that our body can heal itself.
And to all of you friends and relatives of those having this rare disease:
- your visit, your support would truly help the patient be strong and feel loved. You have no idea how much physical and emotional pain we patients feel but we keep it from our loved ones as we don't wanna see them shed tears - that is the most painful sight for us.
To both patients and supporters - keep fighting and never give up and you will be triumphant and be happy again.
Comments
Thank You